Patient Resource Center
Patient Resource Center

Patients and family members have a significant opportunity to contribute to diagnostic accuracy and timeliness by actively participating in the diagnostic process. But often, they don't know the questions to ask, the information to offer, or the steps to take to improve diagnosis. This lack of understanding of the diagnostic process can lead to diagnostic delay, error, and ultimately, harm. At SIDM, we are focused on raising awareness about the magnitude and impact of diagnostic errors within the patient and consumer communities as well as providing tools, and resources to equip these communities to participate in achieving an accurate and timely diagnosis. We look forward to working with and learning from patients and families with “lived experience” and incorporating their stories of diagnostic error in all of SIDM’s diagnostic improvement efforts.

Patient Toolkit for Diagnosis

The Patient's Toolkit for Diagnosis is created for people who are not feeling well or are visiting their doctor or nurse with a health concern. As patients, we have found that taking an active role in our care can help our doctors and nurses figure out a good “working” diagnosis. Not all diagnoses are correct, which is why we say “working” diagnosis. A diagnosis may be certain or uncertain, and making a diagnosis could be easy or difficult.


Share Your Story

SIDM wants to understand the patient experience of getting a diagnosis. What happened? What did not work? By hearing from you — as a patient or a family member— we hope to increase our understanding of ways to improve diagnosis. What were the barriers to get an accurate and timely diagnosis? What are your proposed strategies and solutions to improve diagnosis? Please consider sharing your story with us.


Hear from Patients

Patients and family members who have experienced diagnostic error share their stories of misdiagnosis, its impact on their lives, barriers, and proposed strategies for an accurate and timely diagnosis.


Consumer Articles and TV Clips

Diagnostic error and major areas of misdiagnosis in the news.


Patient FAQs

Learn the important questions and answers when it comes to diagnostic error, including causes, most commonly misdiagnosed diseases, and what you can do to reduce your chances of receiving a misdiagnosis.


Patient Views on Diagnosis

How can you involve patients in improving diagnostic quality? The Agency for Healthcare Research and Quality funded a collaborative research project involving SIDM, the Program for the Advancement of Research on Conflict and Collaboration (PARCC) at the Maxwell School of Citizenship and Public Affairs at Syracuse University, and the Jefferson Center. The project utilized deliberative approaches to engage healthcare consumers in developing informed, practical, patient-focused recommendations for improving diagnostic quality.

Questions, comments, or suggestions? Contact us at
Society to Improve
Diagnosis in Medicine
1501 Hinman Ave, #7B
Evanston, Il 60201