Patients Improving Research in Diagnosis

Bridging the Gap Between Patients and Researchers

The Society to Improve Diagnosis in Medicine (SIDM)'s Patients Improving Research in Diagnosis (PAIRED) program brings together patient advocates with lived experience and expert researchers to integrate the patient perspective in research efforts. The goal of the program is to develop and evaluate an innovative curriculum to train Patient Partners to participate in the design, execution, and dissemination of research to improve diagnosis, integrating the patient and family voice into diagnostic research. This project aligns with SIDM's strategic priority to engage patients in improving current diagnostic performance and reducing harm from diagnostic error.

Led by an expert Advisory Council, this program is the only of its kind that focuses on the unique requirements of research in the process of diagnosis and the choices that patients face during that process. Upon its completion, the first curriculum or training program will be developed to help patients become full partners in research efforts to reduce the risk of diagnostic error that harms them.

Patient Safety Imperative

seminal report from the National Academy of Medicine (NAM) highlighted the impact of patient harm caused by diagnostic error, stating that most people will experience at least one diagnostic error in their lifetime, sometimes with devastating consequences. Recommendations out of the NAM report include increased research around the diagnostic process and greater patient engagement in diagnosis.

Through the program, Patient Partners have been recruited from organizations representing patients and other leading healthcare organizations. Each Patient Partner will be assigned to a Research Mentor who will facilitate their engagement in research activities, evaluate the effectiveness of the program, and plan for its sustainability.

As we work to grow the diagnostic error research field, we must work to ensure that there are patients who can help shape the research that leads to new evidence-based guidelines to improve the diagnostic process.

Kimberly Rodgers, Patient Partner

Patient Partners

Learn more about the group of patient advocates driving our efforts to engage patients in research.

Snapshot - 27

Research Mentors

Meet the researchers working to improve diagnosis and create a more patient-centered system.

rob-photo

Advisory Council

Get to know the individuals guiding the PAIRED initiative to create more patient-focused research efforts.

Project Partners

Thanks to funding from the Patient-Centered Outcomes Research Institute (PCORI), SIDM and Project Patient Care (PPC) are developing an Academy for Patient Partners, which will bring together patients with lived diagnostic error experience and researchers in the field to engage in research activities to improve the diagnostic process.

Patient Organizations

The following organizations identified Patient Partners to participate in the PAIRED program:

Patient Partners
Meet the Patient Partners

The PAIRED Patient Partners are working to help shape research efforts in improving diagnosis.