Patients Improving Research in Diagnosis
Including Patients in Diagnostic Quality and Safety Research Efforts
The Society to Improve Diagnosis in Medicine (SIDM) believes that patients’ views should be central to the design and delivery of research. To help encourage this vision, SIDM has developed the Patients Improving Research in Diagnosis (PAIRED) program to create an innovative curriculum and train Patient Partners to participate in the design, execution, and dissemination of research to improve diagnosis, integrating the patient and family voice into diagnostic research.
Through this program, SIDM and a team of research mentors worked with 15 Patient Partners to refine their diagnostic error stories and cultivate skills to become full partners in research efforts to reduce the risk of diagnostic error that harms them.
Learn more about the group of patient advocates working to create patient-driven research.
Meet the researchers working to improve diagnosis and create a more patient-centered system.
Get to know the individuals guiding the PAIRED initiative to create more patient-focused research efforts.
Patient Safety Imperative
A seminal report from the National Academy of Medicine (NAM) highlighted the impact of patient harm caused by diagnostic error, stating that most people will experience at least one diagnostic error in their lifetime, sometimes with devastating consequences. Recommendations out of the NAM report include increased research around the diagnostic process and greater patient engagement in diagnosis.
As we work to grow the diagnostic error research field, we must work to ensure that there are patients who can help shape the research that leads to new evidence-based guidelines to improve the diagnostic process.
Thanks to funding from the Patient-Centered Outcomes Research Institute (PCORI), SIDM and Project Patient Care (PPC) are developing an Academy for Patient Partners, which will bring together patients with lived diagnostic error experience and researchers in the field to engage in research activities to improve the diagnostic process.
The following organizations identified Patient Partners to participate in the PAIRED program:
Transforming Diagnostic Research
Patients and family members with lived experience of diagnostic error have unique perspectives that can be utilized to inform needed and impactful research on how to improve the diagnostic process. Read more in a new National Academy of Medicine Perspectives Commentary.