Resources for Patients

Patients and family members have a significant opportunity to contribute to diagnostic accuracy and timeliness by actively participating in the diagnostic process. But often, they don't know the questions to ask, the information to offer, or the steps to take to improve diagnosis. At the Society to Improve Diagnosis in Medicine (SIDM), we are focused on raising awareness about the magnitude and impact of diagnostic errors within the patient and consumer communities as well as providing tools and resources to equip these communities to participate in achieving an accurate and timely diagnosis.

Tell Your Story

Patient stories illustrate the scope and importance of addressing diagnostic error. By sharing your story, you help ensure the voices of patients and their families are heard in diagnostic improvement efforts.

Patient and daughter
Clinician and Patient Talking

Patient's Toolkit

The Patient's Toolkit for Diagnosis is a resource created for patients, by patients. With this toolkit, patients can prepare for upcoming appointments, map symptoms, account for medications, and plan for next steps.

Download the Toolkit
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FAQs

Learn the important questions and answers when it comes to diagnostic error, including causes, most commonly misdiagnosed diseases, and what you can do to reduce your chances of receiving a misdiagnosis.

10 FAQs
Mature Mexican Woman

Hear from Patients

Patient stories guarantee the patient voice is heard in efforts to improve diagnostic quality and safety. Hear from patients who have experienced diagnostic error firsthand and see what they're doing to improve diagnosis.

Patient Stories
Patient Engagement

Additional Resources

Looking to get more engaged in your health care? Browse our list of patient resources from top healthcare and patient advocacy organizations. Access symptom trackers, checklists, and more.

Access Resources

Patients Improving Research

SIDM's Patients Improving Research in Diagnosis (PAIRED) program brings together patient advocates with lived experience and expert researchers to integrate the patient perspective in research efforts.

Stay Connected

Learn more about what SIDM is doing to improve patient safety
and stay up-to-date on the latest advancements in reducing diagnostic error by joining our mailing list.