Resources for Patients

Patients and family members have a significant opportunity to contribute to diagnostic accuracy and timeliness by actively participating in the diagnostic process. But often, they don't know the questions to ask, the information to offer, or the steps to take to improve diagnosis. At the Society to Improve Diagnosis in Medicine (SIDM), we are focused on raising awareness about the magnitude and impact of diagnostic errors within the patient and consumer communities as well as providing tools and resources to equip these communities to participate in achieving an accurate and timely diagnosis.


Patient Summits

SIDM's Patient Summits engage patients, patient advocates, family members, healthcare professionals, researchers, policy makers, and others dedicated to patient engagement in improving diagnosis.

Read our Patient Summit Report from the SIDM2022 Future of Diagnosis conference and view the video of a prior summit focusing on Disparities in Diagnosis in the Time of COVID-19: A Multicultural Perspective.

asian senior woman using digital tablet in nursing home or hospital ward

Dx IQ Column

Getting it right is so important, and not always easy to do. That’s why SIDM is sharing this series of columns. Our goal is to help you understand how important your role is. We want you to be informed and well-prepared for every kind of medical interaction that leads to a diagnosis.

Read the Column
Clinician and Patient Talking

Patient's Toolkit

The Patient's Toolkit for Diagnosis is a resource created for patients, by patients. With this toolkit, patients can prepare for upcoming appointments, map symptoms, account for medications, and plan for next steps. Available in English and Spanish.

Download the Toolkit
Mature Mexican Woman

Hear from Patients

Patient stories guarantee the patient voice is heard in efforts to improve diagnostic quality and safety. Hear from patients who have experienced diagnostic error firsthand and see what they're doing to improve diagnosis.

Patient Stories
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PFAC Guides

SIDM has released two new guides for hospitals and health systems in reducing harm from diagnostic errors. Each guide leverages the lived-experience, insights and expertise of PFACs to help drive change to improve diagnostic quality and safety.

Download the Guides
Patient and daughter

Tell Your Story

Patient stories illustrate the scope and importance of addressing diagnostic error. By sharing your story, you help ensure the voices of patients and their families are heard in diagnostic improvement efforts.

Share Your Story
Mapping process for diagnostic error

Patients Improving Research

SIDM's Patients Improving Research in Diagnosis (PAIRED) program brings together patient advocates and expert researchers to integrate the patient perspective in research efforts.

Learn More

What is Diagnostic Error?

Learn the important questions and answers when it comes to diagnostic error, including causes, most commonly misdiagnosed diseases, and what you can do to reduce your chances of receiving a misdiagnosis.